Resources
Resources for individuals and families living with Leigh Syndrome
MitoAction
www.mitoaction.orgMitoAction’s mission is to improve the quality of life for children, adults and families living with mitochondrial disease through support, education, outreach, advocacy and clinical research initiatives.
MitoCanada
www.mitocanada.orgMitoCanada‘s mission is to transform the outlook, quality of life, and sense of community for people impacted by mitochondrial disease through education, awareness, support and transformational patient-focused research.
MitoCon, Italy
www.mitocon.itMitoCon is the reference association in Italy for patients suffering from mitochondrial diseases and their families and is the main link between patients and the scientific community.
Mitochondrial Care Network
www.mitonetwork.orgThe MCN represents a group of physicians at medical centers across the country that have expertise and experience in providing coordinated, multidisciplinary care for patients with genetic mitochondrial disease.
A complete list of MCN Centers can be found here.
The Lily Foundation, United Kingdom
www.thelilyfoundation.org.ukThe Lily Foundation is the UK's leading charity dedicated to fighting mitochondrial disease. Our mission is to support people whose lives are affected by the condition, raise awareness and fund research into it's prevention, diagnosis and treatment.
The Mito Foundation, Australia
www.mito.org.auMitoAction’s mission is to improve the quality of life for children, adults and families living with mitochondrial disease through support, education, outreach, advocacy and clinical research initiatives.
The United Mitochondrial Disease Foundation
www.umdf.orgThe United Mitochondrial Disease Foundation's mission is to promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.
