Donate

Your generous donation will impact the lives of patients through PALS’ support of Dr. Mary Kay Koenig, MD and her team at the Center for the Treatment of Pediatric Neurodegenerative Diseases, and the Leigh Syndrome International Consortium, among other initiatives.

Specifically, over the next year, PALS’ funding priorities include:

TRiaLS: The International Registry for Leigh Syndrome. Funded by PALS and managed by Dr. Mary Kay Koenig's team, TRiaLS is a highly secure patient registry that quickly connects patients to clinicians and researchers seeking treatments and cures for Leigh syndrome. There are currently more than 160 patients from around the world, including the United States, Australia, Canada, Great Britain, India, Japan, Venezuela, Romania, Croatia and Poland on the registry.

Independent Research. PALS granted 50,000 USD total to two research teams that are exploring therapeutic treatments for Leigh syndrome patients. The research projects were identified through PALS’ first-ever Request for Proposals (RFP) seeking independent research that needed funding for the final push to advance a project from the “benchtop to the bedside” with the goal to positively impact patient care in the near future. The awardees were announced in January 2022. Read more.

Tax deductible donations can be made online or by mailing a check payable to People Against Leigh Syndrome to the address as follows:

UTHealth
Attn: Dr. Mary Kay Koenig, CTPND
6410 Fannin, Suite 1535
Houston, TX 77030

For online donations please click here.