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2014 Party for PALS

People Against Leigh’s Syndrome (PALS), one of Houston’s newest and hottest non-profits, hosted its second annual Party with PALS event at Saint Arnold’s Brewery. With more than 175 attendees, PALS $100,000 for research on one of the most devastating mitochondrial diseases, Leigh syndrome.

Research shows that mitochondrial dysfunction is often a central element of these more commonly recognized diseases including Autism, Parkinson’s disease, Alzheimer’s disease, Lou Gehrig’s disease, muscular dystrophy and chronic fatigue, among others.

Funds raised at this event support the UT Mitochondrial Center of Excellence at Children’s Memorial Hermann Hospital through the Memorial Hermann Foundation. The clinic is led by Dr. Mary Kay Koenig and provides cutting edge medical care to individuals affected by neurometabolic and mitochondrial disorders. Additionally, Dr. Koenig treats the world’s largest homogenous Leigh syndrome population in the world.

Leigh syndrome is a progressive neurometabolic disorder with a general onset in infancy or childhood, often after a viral infection, but can also occur in teens and adults. It is characterized on MRI by visible necrotizing (dead or dying tissue) lesions on the brain, particularly in the midbrain and brainstem.

The prognosis for Leigh syndrome is poor. Depending on the defect, individuals typically live anywhere from a few years to the mid-teens. Those diagnosed with Leigh-like syndrome or who did not display symptoms until adulthood tend to live longer.

 

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Josh Bowlin Mike Sperandio Dabney Graney Jeff Peden SJ Swanson Lauren Granello Buddy McClung Will Swanson Janae Tsai and Kristy Bradshaw Dr Mary Kay Koenig Lori Martin Elizabeth Baker 051514 PALs St Arnolds-4037 051514 PALs St Arnolds-4036 051514 PALs St Arnolds-4035 051514 PALs St Arnolds-4034 051514 PALs St Arnolds-4033 051514 PALs St Arnolds-4032 051514 PALs St Arnolds-4030 051514 PALs St Arnolds-4029 051514 PALs St Arnolds-4027 051514 PALs St Arnolds-4026 051514 PALs St Arnolds-4024 051514 PALs St Arnolds-4023 051514 PALs St Arnolds-4022 051514 PALs St Arnolds-4021 051514 PALs St Arnolds-4020 051514 PALs St Arnolds-4019 051514 PALs St Arnolds-4018 051514 PALs St Arnolds-4016 051514 PALs St Arnolds-4013 051514 PALs St Arnolds-4010 051514 PALs St Arnolds-4009 051514 PALs St Arnolds-4008 051514 PALs St Arnolds-4007 051514 PALs St Arnolds-4006 051514 PALs St Arnolds-4004 051514 PALs St Arnolds-4003 051514 PALs St Arnolds-4002 051514 PALs St Arnolds-3998 051514 PALs St Arnolds-3996 051514 PALs St Arnolds-3995 051514 PALs St Arnolds-3994 051514 PALs St Arnolds-3991 051514 PALs St Arnolds-3990 051514 PALs St Arnolds-3989 051514 PALs St Arnolds-3988 PALS Silent auction